Thursday, July 15, 2010

no more o2: untethered for real

As a result of the sleep study, we now know that Jules doesn't require Oxygen at night!

Friday, July 9, 2010

still no

report from the sleep study.

He had one desat that we know of, but they didn't require him to wear oxygen through the study, unlike last time when they rushed in to put him on it, so that is positive.

Joy

Thursday, July 1, 2010

Jules

Jules has had a cold and fever, which means he vomits every time he coughs at night. The nights have been pretty rough going for us.

He saw the eye surgeon and everything looks like it is healing well from surgery. We will go back for one more look in August, just to be sure.

He has the sleep study on Monday, 7/5.
He has a pediatrician visit on July 14.
A follow up to the sleep study on July 15.
A swallow study on July 19
Pulmonary Clinic on July 29
Dermatology Clinic on August 3

I need to schedule another airplane test, some occupational feeding therapy with Keren, and a pre-surgical consult with a plastic surgeon who specializes in pediatric/eye-area plastic surgery. So, more on that later.