Sunday, May 9, 2010

Doing really well

Jules is doing so well!

He is off the IV meds and tolerating rectal tylenol and oxycodone.

He ate a little pizza!

He is drinking about 1/3 of what he normally eats, but the resident came by to say we may be going home!!!!!!!

Happy mothers day to me!

Saturday, May 8, 2010

Recovering

Jules is doing better.

He ate 3 ounces for me in the early afternoon and then another ounce at 4pm, so that's good. And he is heading for his second dose of the iv motrin.

They want to stop the IV pain meds after that and go to tylenol and oxycodone. We aren't sure he will actually take the oxycodone, but we are going to try and if he spits it out -- we will figure something out.

He took a second nap today, which we hope helps him get better.

His color looks good and he played a bit and took a walk.

We are buckling in for what sounds like it might be a tough night when the IV motrin wears off at midnight and they won't let him have more. We are hoping the rectal tylenol and oral oxycodone can help him enough to keep him sleeping and comfortable until the morning.

I can't begin to say how great it is to be 24 hours past the surgery with no intubation!!! It is awesome!

Joy

Out of the ICU

We made it out of the ICU to the surgical floor.

And we are so delighted to have a private room!

Jules is up on his feet, walking around and the new pain meds thru the
iv are helping him. He took 3 ounces of food for the first time, which is his biggest bottle.

We are so happy to have avoided intubation and so glad to see him smile for the first
time.

We are trying to stay on top of the pain. Our criteria for going home are:
1. Eating/drinking his normal intake of food, which is 5-6 bottles with about 5oz each of food in them.
2. No bleeding
3. No fever
4. Pain controlled

And we have to watch and see his oxygen needs.

Joy

Miserable Night

It was a long miserable night with Jules waking up every hour in pain. He had three morphine treatments to help stop his crying and suffering and give him some comfort. He has refused most bottles, taking a total of 1-2 ounces over the past twelve hours. This makes staying on top of the pain very difficult. He spits out all tylenol and oxycodone.
They can't do tylenol through the iv as it doesn't absorb that way in the body. He can't have motrin or anything else because it increases bleeding which is risky after his surgery.
This morning, our brilliant nurse thought of the idea to give him -- Rectal tylenol!!!!
We tried it and are waiting to see how he does.
Hoping to be sent to the surgical floor and hoping to see him start to eat soon.
Just got permission to get him out of the surgical gown and into more comfortable clothes from home.
Joy

Friday, May 7, 2010

Resting

Jules does not want to eat, so he had to go on iv fluids and his throat swelled so he went back on oxygen. He is sleeping now and they said the next 14 hours will be the toughest. We are watching and waiting and hoping he rests comfortably and isn't suffering or in too much pain.

talking to surgeon

Surgery done.
Went fine.
Waiting to hear how he recovers.

Jules in surgery

jules is in surgery right now.
We are anxiously waiting.

getting ready

Jules woke up in a good mood. We fed him his last food for awhile and he has been playing all morning with no idea of what is happening to him today.

Just 2.5 hours until we leave for the hospital.

Joy

Thursday, May 6, 2010

surgery details

Check in is at 11:45am tomorrow.

Jules can't have any food past 5am.

he is going to be a very sad starving little pumpkin tomorrow morning = (

It will be a very long morning leading up to a traumatic afternoon for my little guy.

Joy

Sunday, May 2, 2010

Some fun in pictures

As a brief departure from the morose...



Waiting for hamentaschen on Purim







Starting Passover


Ending Passover (Jules is long asleep)



Tulip Festival