Thursday, July 15, 2010
no more o2: untethered for real
As a result of the sleep study, we now know that Jules doesn't require Oxygen at night!
Friday, July 9, 2010
still no
report from the sleep study.
He had one desat that we know of, but they didn't require him to wear oxygen through the study, unlike last time when they rushed in to put him on it, so that is positive.
Joy
He had one desat that we know of, but they didn't require him to wear oxygen through the study, unlike last time when they rushed in to put him on it, so that is positive.
Joy
Thursday, July 1, 2010
Jules
Jules has had a cold and fever, which means he vomits every time he coughs at night. The nights have been pretty rough going for us.
He saw the eye surgeon and everything looks like it is healing well from surgery. We will go back for one more look in August, just to be sure.
He has the sleep study on Monday, 7/5.
He has a pediatrician visit on July 14.
A follow up to the sleep study on July 15.
A swallow study on July 19
Pulmonary Clinic on July 29
Dermatology Clinic on August 3
I need to schedule another airplane test, some occupational feeding therapy with Keren, and a pre-surgical consult with a plastic surgeon who specializes in pediatric/eye-area plastic surgery. So, more on that later.
He saw the eye surgeon and everything looks like it is healing well from surgery. We will go back for one more look in August, just to be sure.
He has the sleep study on Monday, 7/5.
He has a pediatrician visit on July 14.
A follow up to the sleep study on July 15.
A swallow study on July 19
Pulmonary Clinic on July 29
Dermatology Clinic on August 3
I need to schedule another airplane test, some occupational feeding therapy with Keren, and a pre-surgical consult with a plastic surgeon who specializes in pediatric/eye-area plastic surgery. So, more on that later.
Saturday, June 19, 2010
Day after surgery
Well, despite continuous blood dripping from his nose, Jules looks good. He is in less pain today and is running around the house like a little maniac this morning.
This week he has his sleep study on Tuesday 6/22 and starts little gym on Friday.
This week he has his sleep study on Tuesday 6/22 and starts little gym on Friday.
Friday, June 18, 2010
waiting
Surgery is done. we are waiting for him to wake up.
we have spoken with surgeon and with the anasthesiologist.
Jules has an IV for fluids. He has had some anti nausea meds and narcotics.
Surgery worked for unblocking ducts and it turns out there was some other issue in the nose that the surgeon fixed too.
we have spoken with surgeon and with the anasthesiologist.
Jules has an IV for fluids. He has had some anti nausea meds and narcotics.
Surgery worked for unblocking ducts and it turns out there was some other issue in the nose that the surgeon fixed too.
in surgery now
Jules is in surgery right now.
Scott got to hold him down while they put the mask on for anasthesia.
He is wearing his little hospital gown and hopefully they will come get us and tell us it is over soon.
Scott got to hold him down while they put the mask on for anasthesia.
He is wearing his little hospital gown and hopefully they will come get us and tell us it is over soon.
Thursday, June 17, 2010
surgery tomorrow
Jules is having his tear duct surgery tomorrow.
Check in is at 7am. Surgery is at 9am.
No food all morning, so that should be a bit of a struggle.
He weighed 22 pounds 9 oz at the doctor last week, so he is growing VERY well post tonsil surgery!
Jules has a sleep study tues, 6/22 to make sure the tonsil surgery cured his oxygen needs at night. If he passes, we can say goodbye to oxygen! I'm anxiously crossing my fingers.
Joy
Check in is at 7am. Surgery is at 9am.
No food all morning, so that should be a bit of a struggle.
He weighed 22 pounds 9 oz at the doctor last week, so he is growing VERY well post tonsil surgery!
Jules has a sleep study tues, 6/22 to make sure the tonsil surgery cured his oxygen needs at night. If he passes, we can say goodbye to oxygen! I'm anxiously crossing my fingers.
Joy
Friday, June 4, 2010
Good News!!!
Just came back from Children's and Jules weighed 21.15oz!
He weighed 20 pounds before surgery, so this is a 23.3 gram weight gain a day since the surgery and almost a 2 pound weight gain in one month!
He made it onto the growth chart for 3% for weight, but not on there yet for height.
We are going to continue on Periactin and see about doing another swallow study to see if he is doing better enough to get off the thickener we use to make his food into pancake batter texture.
Joy
He weighed 20 pounds before surgery, so this is a 23.3 gram weight gain a day since the surgery and almost a 2 pound weight gain in one month!
He made it onto the growth chart for 3% for weight, but not on there yet for height.
We are going to continue on Periactin and see about doing another swallow study to see if he is doing better enough to get off the thickener we use to make his food into pancake batter texture.
Joy
Wednesday, June 2, 2010
update
I just got off the phone with Swedish medical in Seattle and scheduled a sleep study for Jules with their pediatric sleep pulmonologist for June 22!
So much better than December.
I am so excited to have found a way around Childrens on this one.
In other news, Jules qualified for speech therapy this morning, which really unsettled me. He has a delay in language receptive skills. So, we will add speech therapy to his feeding therapy at Boyer Clinic.
And we go for a weigh-in on Friday at Childrens hospital to see how his weight gain has been since the surgery.
And we see his pediatrician next wed. for a surgery follow-up.
Jules started Boyer classroom yesterday and was a big fan of preschool. He had 30 minutes to play in a huge gym with fun things to climb and bounce and swing on. He had 30 minutes of snack, where he actually sat down and ate some yogurt. And then 30 minutes of open play in the classroom. Finally, they finished with 30 minutes of music. He was pretty annoyed that he had to sit down for the music part and wasn't allowed to play with all of their toys during that time.
Today is scott's and my 8 year anniversary and this summer is the anniversary for 16 years of being together.
So much better than December.
I am so excited to have found a way around Childrens on this one.
In other news, Jules qualified for speech therapy this morning, which really unsettled me. He has a delay in language receptive skills. So, we will add speech therapy to his feeding therapy at Boyer Clinic.
And we go for a weigh-in on Friday at Childrens hospital to see how his weight gain has been since the surgery.
And we see his pediatrician next wed. for a surgery follow-up.
Jules started Boyer classroom yesterday and was a big fan of preschool. He had 30 minutes to play in a huge gym with fun things to climb and bounce and swing on. He had 30 minutes of snack, where he actually sat down and ate some yogurt. And then 30 minutes of open play in the classroom. Finally, they finished with 30 minutes of music. He was pretty annoyed that he had to sit down for the music part and wasn't allowed to play with all of their toys during that time.
Today is scott's and my 8 year anniversary and this summer is the anniversary for 16 years of being together.
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