Sunday, May 31, 2009

3 for 3

So, three weekends ago Gigi and Jules were sick. Then, last weekend I had strep throat and this weekend, it was Scott. Scott got strep and had to miss work on friday and we Silvers stretched to get through the days. And now, Scott is feeling better, I feel better, and Gigi and Jules are okay. We are hoping to catch a break and find boring, peaceful weeks ahead.
I am imagining tedious doctor appointments where they shake their heads and wonder if jules and I should bother coming back as often because he is doing so well.... And weekends where no one is sick and we can actually relax and unwind. Maybe, just maybe I will have enough rest and time to speak on the phone to a friend or family member! It would be so nice. So, that is what I am hoping for.
Scott's parents are coming next weekend to help out and will take Gigi to their hotel for a sleepover. We have hired Gigi's babysitter to guard Jules while we attempt our second date night in many months. It happens to be our seven year wedding annivesary and our fifteenth anniversary of being together on June 2nd and we are looking forward to getting out of this cabin fever situation. We aren't quite ready to celebrate, things with Jules and us this year have left us perhaps a bit too shell shocked and weary for that, but just to get out of the house and be together and at the very least appreciate that however awful this year has been and the damage it has done to us as individuals, it has only strengthened our marriage. And for that I am very grateful.
Goodnight,
Joy

Monday, May 25, 2009

Saturday, May 23, 2009

On the mend

I am starting to feel better from the antibiotics. My throat is in less pain, my fever is down, and I got up and about for a few hours.
Gigi feels right as rain and her anti-bacterial ointment for her face is doing the trick.
Jules feels a lot better from his cold, with just residual conjestion and coughing.
I think the Silvers are on the mend!
Scott took care of both children from 5:30 last night until about that time today when our friends Irene and Tal offered to take Gigi for a sleepover (Thank you Thank you thank you!). He told me that he needs me to get better soon and is not prepared to be a single dad. It was a pretty tough day for scott.
Joy

Friday, May 22, 2009

I have strep throat

on tylenlol every four hours, my fever is 102.7.
I have the shivers and feel like I can't swallow. I started the antibiotics this afternoon.
Joy

fever climbing

My fever is now 102 on tylenlol and my throat feels so swollen and hurts so much that swallowing is excrutiating. I have left a voicemail for my doctor and will call again when her practice opens at 9am to see if anything can be done to help me get better or be more comfortable while my body tries to fight this off. 
Joy

Thursday, May 21, 2009

more fever

So, I'm sick. Right now, I'm sporting 101 fever and feel awful. I caught Gigi's illness. First I was freezing, then boiling hot, and now my throat is so sore that I can't bear to swallow.
Gigi finished her fever, but developed some sort of bacterial rash that required $75 ointment to conquer the infection.
Last night was terrible, Jules coughed for hours and hours on end and gagged so hard, his NG tube came out part-way. I didn't sleep a wink. The nurse came to get us at two am for help with Jules.
Our house looks like a cyclone hit it.
Scott had to leave work early to take gigi to the doctor for her rash because they wouldn't let me go to the pediatrics clinic with a fever and sore throat. Plus, I can't approach or touch jules, because it is too risky for him to get this.
So, scott is a single dad right now taking care of three sick family members and I'm tearing up as I type this because it just feels like too much. I know this is just life, but it feels so cruel not to be able to hold Jules and I just feel run-over. I feel guilty because my RA drugs make me immunosuppressed and when I don't get sleep for nights on end, it shouldn't surprise me that I caught Gigi's fever illness.
Back to bed.
Joy

Wednesday, May 20, 2009

good labs

Three sets of great labs! Best pco2 ever posted  -- a 36! Also recorded a 39 and 40 and all when he is enduring a cold. Maybe he is finally turning a corner with the lungs? We dearly hope so.
Gigi's fever ended monday morning, but she is still not quite up-to-snuff apparently.
Jules is wheezy and plodding along on prednisone and albuterol inhalations. He is vomiting only about four times a day instead of eleven, so we are  finally getting some sleep and back to only two loads of laundry a day instead of our high point of the weekend - SIX!
Also,this morning jules took his meds via his bottle instead of the NG tube for the first time. It was very exciting.
Joy

Sunday, May 17, 2009

Hard weekend

Gigi still has a fever. the third full day of fever. If it is here in the morning, I am taking her to the doctor.
Jules has a cold and we are hovering over him, checking his temperature, checking his oxygen levels, watching and waiting. He threw up about eleven times today.
Keeping a sick gigi and jules content was impossible and the best we can say about today is that we survived it.
Goodnight,
Joy

Al Bundy Moment and some May Photos

From Beginning of May 2009

From Mother's Day 2009

From For a moment, nothing on Julian's face

Without a tube for a moment...

Last week, before his ng tube got pulled out twice on Friday, we changed his tube from his right side to his left side. Since he gets most of his food by bottle during the day we took the opportunity to get a few pictures without his equipment...