Happy Halloween 2010

The "Earl" cousins all visited...

From Cousins Visit October 2010

Here's the youngest Earl (well Drake...)

From Cousin Visit Waren Kirk Only

But then a witch decided to visit punishment for the second time on our parked car...remember the first time something hit our parked car?

From Tree on Car

And Jules is ok. Horrible cough. Probably eats just enough. But happy, as always!

and stepping back

He lost two pounds on the pediatrician's scale today, weighing in at 23 pounds.

so discouraging.

Joy

jules news

Jules is doing great.

After a rough vomiting illness that lasted week and left him a pound lighter, he rebounded with a new and exciting and dare-I-say normal interest in solid food!

It is the most heart warming thing in the whole world to see him EAT!

He is doing great off oxygen, but he failed his airplane test and requires oxygen for flying. We are going to try and fly this Friday with Jules and his oxygen concentrator and some nasal cannula, so wish us luck = )

We doubled his prevacid dose (thanks to heidi) and the amount of vomiting is SO much better.

He weighs 24.6 pounds and is chatting up a storm.

We have an appointment with a specialist developmental pediatrician at the end of September and another speech evaluation in September as well.

Joy

no more o2: untethered for real

As a result of the sleep study, we now know that Jules doesn't require Oxygen at night!

still no

report from the sleep study.

He had one desat that we know of, but they didn't require him to wear oxygen through the study, unlike last time when they rushed in to put him on it, so that is positive.

Joy

Jules

Jules has had a cold and fever, which means he vomits every time he coughs at night. The nights have been pretty rough going for us.

He saw the eye surgeon and everything looks like it is healing well from surgery. We will go back for one more look in August, just to be sure.

He has the sleep study on Monday, 7/5.
He has a pediatrician visit on July 14.
A follow up to the sleep study on July 15.
A swallow study on July 19
Pulmonary Clinic on July 29
Dermatology Clinic on August 3

I need to schedule another airplane test, some occupational feeding therapy with Keren, and a pre-surgical consult with a plastic surgeon who specializes in pediatric/eye-area plastic surgery. So, more on that later.

Day after surgery

Well, despite continuous blood dripping from his nose, Jules looks good. He is in less pain today and is running around the house like a little maniac this morning.

This week he has his sleep study on Tuesday 6/22 and starts little gym on Friday.

At home

Recovering.

Yay!

waiting

Surgery is done. we are waiting for him to wake up.

we have spoken with surgeon and with the anasthesiologist.

Jules has an IV for fluids. He has had some anti nausea meds and narcotics.

Surgery worked for unblocking ducts and it turns out there was some other issue in the nose that the surgeon fixed too.

in surgery now

Jules is in surgery right now.

Scott got to hold him down while they put the mask on for anasthesia.

He is wearing his little hospital gown and hopefully they will come get us and tell us it is over soon.