Well, despite continuous blood dripping from his nose, Jules looks good. He is in less pain today and is running around the house like a little maniac this morning.
This week he has his sleep study on Tuesday 6/22 and starts little gym on Friday.
Saturday, June 19, 2010
Friday, June 18, 2010
waiting
Surgery is done. we are waiting for him to wake up.
we have spoken with surgeon and with the anasthesiologist.
Jules has an IV for fluids. He has had some anti nausea meds and narcotics.
Surgery worked for unblocking ducts and it turns out there was some other issue in the nose that the surgeon fixed too.
we have spoken with surgeon and with the anasthesiologist.
Jules has an IV for fluids. He has had some anti nausea meds and narcotics.
Surgery worked for unblocking ducts and it turns out there was some other issue in the nose that the surgeon fixed too.
in surgery now
Jules is in surgery right now.
Scott got to hold him down while they put the mask on for anasthesia.
He is wearing his little hospital gown and hopefully they will come get us and tell us it is over soon.
Scott got to hold him down while they put the mask on for anasthesia.
He is wearing his little hospital gown and hopefully they will come get us and tell us it is over soon.
Thursday, June 17, 2010
surgery tomorrow
Jules is having his tear duct surgery tomorrow.
Check in is at 7am. Surgery is at 9am.
No food all morning, so that should be a bit of a struggle.
He weighed 22 pounds 9 oz at the doctor last week, so he is growing VERY well post tonsil surgery!
Jules has a sleep study tues, 6/22 to make sure the tonsil surgery cured his oxygen needs at night. If he passes, we can say goodbye to oxygen! I'm anxiously crossing my fingers.
Joy
Check in is at 7am. Surgery is at 9am.
No food all morning, so that should be a bit of a struggle.
He weighed 22 pounds 9 oz at the doctor last week, so he is growing VERY well post tonsil surgery!
Jules has a sleep study tues, 6/22 to make sure the tonsil surgery cured his oxygen needs at night. If he passes, we can say goodbye to oxygen! I'm anxiously crossing my fingers.
Joy
Friday, June 4, 2010
Good News!!!
Just came back from Children's and Jules weighed 21.15oz!
He weighed 20 pounds before surgery, so this is a 23.3 gram weight gain a day since the surgery and almost a 2 pound weight gain in one month!
He made it onto the growth chart for 3% for weight, but not on there yet for height.
We are going to continue on Periactin and see about doing another swallow study to see if he is doing better enough to get off the thickener we use to make his food into pancake batter texture.
Joy
He weighed 20 pounds before surgery, so this is a 23.3 gram weight gain a day since the surgery and almost a 2 pound weight gain in one month!
He made it onto the growth chart for 3% for weight, but not on there yet for height.
We are going to continue on Periactin and see about doing another swallow study to see if he is doing better enough to get off the thickener we use to make his food into pancake batter texture.
Joy
Wednesday, June 2, 2010
update
I just got off the phone with Swedish medical in Seattle and scheduled a sleep study for Jules with their pediatric sleep pulmonologist for June 22!
So much better than December.
I am so excited to have found a way around Childrens on this one.
In other news, Jules qualified for speech therapy this morning, which really unsettled me. He has a delay in language receptive skills. So, we will add speech therapy to his feeding therapy at Boyer Clinic.
And we go for a weigh-in on Friday at Childrens hospital to see how his weight gain has been since the surgery.
And we see his pediatrician next wed. for a surgery follow-up.
Jules started Boyer classroom yesterday and was a big fan of preschool. He had 30 minutes to play in a huge gym with fun things to climb and bounce and swing on. He had 30 minutes of snack, where he actually sat down and ate some yogurt. And then 30 minutes of open play in the classroom. Finally, they finished with 30 minutes of music. He was pretty annoyed that he had to sit down for the music part and wasn't allowed to play with all of their toys during that time.
Today is scott's and my 8 year anniversary and this summer is the anniversary for 16 years of being together.
So much better than December.
I am so excited to have found a way around Childrens on this one.
In other news, Jules qualified for speech therapy this morning, which really unsettled me. He has a delay in language receptive skills. So, we will add speech therapy to his feeding therapy at Boyer Clinic.
And we go for a weigh-in on Friday at Childrens hospital to see how his weight gain has been since the surgery.
And we see his pediatrician next wed. for a surgery follow-up.
Jules started Boyer classroom yesterday and was a big fan of preschool. He had 30 minutes to play in a huge gym with fun things to climb and bounce and swing on. He had 30 minutes of snack, where he actually sat down and ate some yogurt. And then 30 minutes of open play in the classroom. Finally, they finished with 30 minutes of music. He was pretty annoyed that he had to sit down for the music part and wasn't allowed to play with all of their toys during that time.
Today is scott's and my 8 year anniversary and this summer is the anniversary for 16 years of being together.
Tuesday, May 25, 2010
classic
So, the sleep study people called me to schedule julian's follow-up sleep study, the one to see if his tonsil removal improved the Apnea situation.
They were asked by our pediatrician to schedule an appointment in one month's time so that we don't keep him on oxygen if it isn't medically needed.
Guess what date they offered me as my ONLY option?
December 2nd.
The lady actually said, "I'm sorry, you are going to hate me for this, but the only date we have is December 2nd."
Grr.
I had to take that date so "I could get in the system."
I'm confident this will take me about twelve hours to unravel and talk to the right people to help me get a date that isn't crazy.
And I know I shouldn't complain when it is Jules who has to wear cannula and have strangers point at his stickers, etc... but I am really ready to not have a full time job scheduling doctor appointments!!!
They were asked by our pediatrician to schedule an appointment in one month's time so that we don't keep him on oxygen if it isn't medically needed.
Guess what date they offered me as my ONLY option?
December 2nd.
The lady actually said, "I'm sorry, you are going to hate me for this, but the only date we have is December 2nd."
Grr.
I had to take that date so "I could get in the system."
I'm confident this will take me about twelve hours to unravel and talk to the right people to help me get a date that isn't crazy.
And I know I shouldn't complain when it is Jules who has to wear cannula and have strangers point at his stickers, etc... but I am really ready to not have a full time job scheduling doctor appointments!!!
Monday, May 24, 2010
Doing well
Jules is off all pain meds and is looking pretty good post surgery. Can't wait to weigh him and find out how much he has grown with the tonsils gone.
Keren (his OT) checked him out and noticed his hyper-extension of his neck while eating is gone. That, plus the fact he can breathe with his mouth closed, drink his bottle without pausing to gasp for air, and isn't snoring... all combine to show me that the tonsil surgery was a success. We need the sleep study to confirm it though, so we can get off the oxygen.
I feel like I'm waking up after a very long sleepy and troubling time and am looking forward to spending my time this week cleaning things up around here and getting our lives kickstarted again.
Jules is now free to do many things for the first time. I will be sure to take lots of pictures of all these "firsts" as he experiences the world.
Joy
Keren (his OT) checked him out and noticed his hyper-extension of his neck while eating is gone. That, plus the fact he can breathe with his mouth closed, drink his bottle without pausing to gasp for air, and isn't snoring... all combine to show me that the tonsil surgery was a success. We need the sleep study to confirm it though, so we can get off the oxygen.
I feel like I'm waking up after a very long sleepy and troubling time and am looking forward to spending my time this week cleaning things up around here and getting our lives kickstarted again.
Jules is now free to do many things for the first time. I will be sure to take lots of pictures of all these "firsts" as he experiences the world.
Joy
Wednesday, May 19, 2010
fever
So, Jules has had an on and off again fever. he had it all last night, but it went away this morning. He also vomited on me yesterday, but had no other symptoms.
Tonight, his temp went up again, but then it quickly went back down again.
Scott is in London and tonight is my first night without him here. I am praying that Jules makes it through the night fever-free and in no pain. I am prepared to be up all night, but hoping I won't be.
Since Jules stopped needing oxycodone, he hasn't wanted to eat any solid foods. I'm hoping that as he starts to feel better and doesn't need tylenol, etc... that he will be comfortable enough to swallow solid foods and we can begin working on getting him to eat.
Goodnight,
Joy
Tonight, his temp went up again, but then it quickly went back down again.
Scott is in London and tonight is my first night without him here. I am praying that Jules makes it through the night fever-free and in no pain. I am prepared to be up all night, but hoping I won't be.
Since Jules stopped needing oxycodone, he hasn't wanted to eat any solid foods. I'm hoping that as he starts to feel better and doesn't need tylenol, etc... that he will be comfortable enough to swallow solid foods and we can begin working on getting him to eat.
Goodnight,
Joy
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