Finally, this morning a pulmonologist was able to come. Scott and I rushed to the NICU to be there for the meeting (thanks to Mark Mendalow who was able to tell us the doc was on his way so that we could both be there in time and for calling to check and find out if/who/when someone was coming).
We were told that the only thing to try was an oral coarse of steroids. The doctor said he would not be surprised if they had no effect though. Julian's lungs are "stiff."
We asked whether Jules should be moved to the NICU at childrens so that he could be followed closely by the pulmonologists there. They decided to see if the steroids work and then consider moving him to Childrens if they don't.
The specialist also told us that Jules time remaining in the hospital would be measured by months, not weeks.
Joy
4 comments:
I'm so sorry to hear this. I hope the steroids have the desired effect. Julian is still in our prayers daily and we are thinking about you.
I have the same comment as Sally. Love from Philadelphia to the entire Silver clan.
I am sorry to hear this news. Your whole family is constantly in my thoughts.
I am hopeful for good results with the steroids, and for a move to the Children's Hopsital.
God Bless all of you.
We know that you will get Jules Drake Silver to best docs and care around. Because that Drake and that Silver in his name stand just about as much as Jules. Love and all the hugs you need.
Love Miriam, Bleys and Nick
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