Thursday, June 4, 2009

jules news

Jules is doing a "cautionary week-long trial" to see if he can gain weight and eat his total food volume in calories through a bottle with no night time assistance from his feeding pump/ng tube.

He seems to be doing okay with eating the volumes required of him, but we aren't sure if the exercise of eating all those bottles is burning the calories at too rapid a clip. He may not gain weight after all.

We are trying not to get our hopes up too high and have remained on course, visiting with the surgeon yesterday and scheduling a G tube surgery for Jules. In order to have surgery, he has to have a special GI study and be approved for sedation by the same doctors who freaked out last time. So, I am not quire invested in the entire thing.

In the meantime, he looks adorable without the NG tube and is a lot easier to handle without fear of pulling it out all the time. He is more comfortable and so are we!

Here's to hoping he gains weight at the end of the week!
Joy

3 comments:

Jane said...

YES!

Wiley Coyote said...

Whoopee!!!! Go Jules!!!!

Janine said...

Maybe the doctor can recommend more calories in his formula? We weren't even allowed to give breastmilk "straight up" -- we had to add extra calories. I'm thinking of you and hoping for a weight gain this week as well (not for me, for Jules!).