Jules went for his one year pulmonary clinic yesterday. It took a few hours, but he had his blood taken for labs and served up a PCo2 of 42! So we stopped the lasix cold turkey and are watching him for signs of respiratory distress. So far, so good. The docs were so pleased to see him end his year long dependence on a drug they were very worried about, so everyone was thrilled.
Jules weighed in at 17 pounds and 26 1/4 inches, which if you correct for three months early, puts him in the 0.0 percentile, but that is better than losing weight or falling off his growth curve. Since, he was born in the 0.0 percentile for height and weight, he is keeping up with his curve, so that is good.
He had a chest xray and occupational therapy and we picked up his special meds from the pharmacy. He is now on just two diuretics, his reflux med, and his potassium and sodium chloride.
He is working on waving hello and goodbye.
We have moved into and unpacked all the boxes on our kitchen level and bedroom level. Starting this weekend, we are going to unpack and excavate our "all the way downstairs' level, which will be a HUGE project. We are working to be completely moved in and unpacked for Julian's bris on 10/18.
Love,
Joy
4 comments:
YAY!! go jules!
Wow! How exciting he was able to go off LASIX cold turkey! Thank you for sharing this great news.
YAHOO!
This is such great news. I am wearing a big smile right now for Jules and you all.
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