Jules did well on IV fluids and Zofran, so he was able to go to pedialyte and then got to go home!
He is doing so much better!
This week he has:
Wed -- Airplane simulator test to see if he desats with cabin pressure changes. Plus appointment with Physical therapy.
Thurs - Pulmonary Clinic to discuss lack of growth, tonsil removal situation and how to get in sooner with ENT, and if a G tube is also going to happen. and a check-in with nutritionist as well as OT with Keren.
Friday - Evaluation at Boyer Children's Clinic to see whether Julian needs more special needs services
Sunday 4/18 -- Overnight sleep study to evaluate tonsil situation more closely
I will post more often on the blog to let you all know how he is doing with all these appointments.
Goodnight,
Joy
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