Jules ate really well today (well drank all his bottles well) and is at his pre-surgery fluid totals. So happy for him!
He went to Children's to meet with a special dermatologist today about his skin growth near the eye. Lots of pictures and measurements were taken. We will come back in August to see if the skin area has expanded. If it has, we will discuss a biopsy and/or removal with a plastic surgeon.
If it is growing, it will need to be removed in a few months.
I feel bad for Jules because he is on track for three surgeries this year before he turns 2 years old!
The tonsils, the skin growth, and the blocked tear ducts (which is scheduled for this summer).
Hopefully, the tonsils will be the most difficult one, so that the easier ones to recover from are in front of him.
He is still needing the oxycodone to get by, so we are keeping it coming every four hours. We moved the meds
schedule so our nights are now 7PM, 11PM, and 3AM.
We are still pretty exhausted from the time in the hospital and the nights, so we took naps to catch up on sleep today and scott is going to go back to work on Thursday.
Joy
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thinking of you all!! (btw, my nighttime schedule is the same for Paloma -- 7, 11, 3 and then 5am - UG!) take care and stay positive!
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