It started with rounds at UW where we were told that Jules would go to Children's sometime maybe later this week, but definitely not today. He gained 13 grams and they gave him his synagis shot to protect him against RSV.
I visited with him all morning and left at ten thirty after being reassured he was definitely not going to Children's today.
At eleven thirty, they called to tell me he was being moved NOW and to come back to the hospital. However, I was busy going to Gigi's school with cupcakes to have her school birthday party. So, scott cancelled his day and rode in the ambulance with Jules to Children's.
Jules has a new room with a crib, no more isolette!
We met with the pulmonologist and felt very good about Julian's care.
Jules has a roommate. Her name is Amanda and she has been in the hospital since the day she was born at 24 weeks (her mom also had Preeclampsia) and she, Amanda has now been at the hospital for eleven and a half months! She also has chronic lung disease. The new pulmonologist calls the area of the hospital where Jules and Amanda reside, "Vent Village." All the babies there are chronic lung disease kids on vents, oxygen, etc...
We are exhausted and going to sleep.
Thanks for all the prayers to get him to Children's. We are so very happy to be there.
Joy
1 comment:
How wonderful. Good news, a lot of it, of late. Terrific!
Miriam
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