He also had a big accomplishment -- he drank four bottles, each with about an ounce of thickened formula in them. It was the most he was ever able to take by bottle. I am trying not to get my hopes up that it might be possible to work up to a place where we can hurl our infinity feeding pump off the roof of kartik's building. But, it would be so nice if Jules could eat via bottles and not have that tube stuffed down his nose and back of his throat.
the pump is truly hell. staying on top of the entral feeding bags, switching out bags of formula and ice packs, and keeping it running and charged 24 hours a day is horrible. Not to mention the taping of jules face and the suffering he endures every time we have to remove the tape on his skin and re-tape, which is every third day or so.
Jules had his first visit to the park today. he LOVED it. He saw a dog for the first time, felt wind on his bald little head, and watched gigi frolic all around.
Goodnight,
joy
1 comment:
Great work Jules!
I am sorry about the tape. That makes me sad for the little guy. But how great that he got to visit the park. Many wonderful park visits in the future for Julian!
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